I don't usually share personal stuff, but I think now is the time.
Yesterday, Reliquary, my latest adult novel, was published. It's an urban fantasy with hints of erotic romance, and writing it (and the other books in the series, all of which I wrote last year and will be published over the next few months) helped get me through one of the toughest periods in my life thus far.
I experienced four major life stressors in 2015. My marriage ended. I had to leave the job I'd had for ten years and dearly loved. I moved from the home I thought I'd grow old in. And one of my children was diagnosed with what will be a lifelong medical condition that requires constant monitoring and intervention (Type 1 diabetes). I am fortunate to have friends and family who love me dearly and support me unconditionally, but even so, I'm gonna be honest--I'm okay now, and much happier than I was, but there were times last year when I thought I was going to crater.
Reliquary was the story that came to me as I walked through the painful early days of 2015, and telling it carried me through the weeks and months that followed. The series is about Mattie, a woman who thinks she has the life she wants, and then is forced to choose between her safe, predictable small-town world and the much bigger, scarier, and less certain world of magic. Her decision does not occur in one moment--it is a process that plays out through the series--and although (sadly) I don't have special powers or Asa Ward in my real life, writing the books allowed me to work through some of my own decisions.
Maybe I'm not supposed to admit that. It's all about the story, right? It has to stand on its own. (I think it does. Also, Asa Ward.) But I think writing and reading are redemptive in so many ways--they offer us a safe place to to explore our feelings, to tread paths and live out choices we cannot (or might not yet), for whatever reason, experience in our everyday lives. They give us characters and events and dynamics to bounce off of, to hate or love, to embrace or push away. When stories work, they capture moments and emotions with such intensity that they slide under our skin and into our bloodstream.
I wrote Reliquary because I needed to. I had to. It is pure escape, dark and sexy and fun, yet more psychologically real than almost anything I've yet written.
We are all familiar with the story of Moses and the Israelites, enslaved by the Egyptians for three hundred years. God heard His people’s cries for help, and by a series of divine interventions, set them free from slavery and led them out of Egypt and into the wilderness, a desert.
However, the wilderness was not the Israelites destination, it was a place God was taking them through on the way to the land God had promised to give them, ‘a land flowing with milk and honey,’ Exodus 13:5.
The Bible frequently uses the Old Testament nation of Israel as a type or symbol of our own lives. We Christians were all slaves too – slaves to sin and death. God heard our cries for help, and through Christ’s atoning death and resurrection, set us free from slavery and led us out. And just like God lead Israel through a wilderness on the way to their Promised Land, there are times that He leads us through wildernesses on our way to heaven.
Why did God take Israel through the wilderness instead of taking them straight to the Promised Land? He did so to help them grow and mature. ‘Consider it pure joy, my brothers, whenever you face trials of many kinds, because you know that the testing of your faith develops perseverance. Perseverance must finish its work so that you may be mature and complete, not lacking anything.’ James 1:2-4.
To say it in another way, although God had taken Israel out of Egypt, He wanted to take Egypt out of Israel. Likewise, although God has taken us out of the world and sin, He wants to take the world and our old self-centred sinful nature out of us. God used my time in the wilderness experience of depression to purge so much of my sinful nature. He taught me to rely upon Him instead of on myself, to rest in His peace instead of trusting in my feelings, to trust that He was in control of my life, and that I have nothing to fear.
How long we tarry in the wilderness while on the way to our Promised Land depends largely on how we react to the wilderness experience. How did the Israelites respond to their journey through the wilderness?
Although they had just witnessed the awesome power of God in Egypt, what did they say when Pharaoh’s army trapped them against the shores of the Red Sea? “Was it because there were no graves in Egypt that you brought us to the desert to die? What have you done to us by bringing us out of Egypt? Didn't we say to you in Egypt, 'Leave us alone; let us serve the Egyptians'? It would have been better for us to serve the Egyptians than to die in the desert!” Exodus 14:11-12.
And when they ran out of food? "If only we had died by the LORD's hand in Egypt! There we sat around pots of meat and ate all the food we wanted, but you have brought us out into this desert to starve this entire assembly to death." Exodus 16:3
And when there was no water to be found? But the people were thirsty for water there, and they grumbled against Moses. They said, "Why did you bring us up out of Egypt to make us and our children and livestock die of thirst?" Exodus 17:3.
What about when faced with the powerful nations that occupied Canaan? All the Israelites grumbled against Moses and Aaron, and the whole assembly said to them, "If only we had died in Egypt! Or in this desert! Why is the LORD bringing us to this land only to let us fall by the sword? Our wives and children will be taken as plunder. Wouldn't it be better for us to go back to Egypt?" Numbers 14:2-3.
In all these cases, instead of turning to God and asking for His help, they complained and grumbled against God. Because of this, they ended up spending forty years in the wilderness instead of a few months.
Perhaps while in the wilderness we have had the same reaction - grumbling against God and wishing we were back in the world. “Life was better before I became a Christian, things were easier when I was in the world.” But we know that is not true. Firstly, unbelievers experience trials too, but without the comforting strength of Christ to sustain and help them. And secondly, even if life as an unbeliever had been easier, it was an illusion, a lie, as that life leads to hell. “Enter through the narrow gate. For wide is the gate and broad is the road that leads to destruction, and many enter through it. But small is the gate and narrow the road that leads to life, and only a few find it.” Matthew 7:13-14.
A wilderness experience may seem unbearable to those who are in it, but we can be confident that God will not lead us through something that we cannot overcome through His strength. For example, did you know that God could have lead the Israelites to Canaan via a shorter route, but that this dangerous route was too hard for them? Exodus 13:17-18 When Pharaoh let the people go, God did not lead them on the road through the Philistine country, though that was shorter. For God said, "If they face war, they might change their minds and return to Egypt." So God led the people around by the desert road toward the Red Sea.
So we can be confident that whatever we are going through today can be overcome if we rely upon Him.
Not all trials become a wilderness experience, although many have the potential of becoming one. The fact is that we can skip the wilderness aspect of suffering altogether by responding differently to the trial. See below a wilderness experience contrasted against suffering that skips the wilderness.
Suffering Leading to A Wilderness Experience * We go through a trial * We respond by complaining and grumbling against God * We become bitter * We enter an extended time in a spiritual wilderness * Internal suffering becomes acute, almost unbearable * We cry out to the Lord for help, and repent of our grumbling * The Lord answers and leads us out of the wilderness * The Lord continues to lead us along the road that leads to life
Suffering that Skips the Wilderness Experience * We go through a trial * We respond by thanking God for it * We acknowledge that God is in control of every aspect of our life, even this one * We rest in God’s peace, content to be in this place at this time * The suffering does not become internal, but remains outside us as we take refuge in the Lord * We reverently pour our heart out to the Lord, and wait patiently for His strength and provision * The Lord continues to lead us along the road that leads to life
I have been through both of the above. Trials I experienced in late 1989 lead to one of the worst wilderness experiences possible, depression. While in this wilderness I went from pouring my heart out to God and reminding myself that He was faithful, to grumbling and complaining. I went from one extreme to the other, with the grumbling hindering my Christian walk and recovery.
If only the Israelites in the desert had praised God whenever they encountered difficulties, and waited patiently for Him to provide for their needs. Psalm 37:7 Be still before the LORD and wait patiently for him. They had seen His works, His miracles, they saw the cloud and the pillar of fire – they knew He was with them. Had they done this instead of grumbling and complaining, they would have left the wilderness much sooner.
When the Lord taught me to stop grumbling, fearing and fighting what I was going through, that I needed to wait patiently for Him to lead me to full recovery, the inner suffering become noticeably less. As I waited to recover I praised Him, accepted that this was where He had lead me, and acknowledged that He was in control of my life, regardless of how things seemed. This was when my trek out of that wilderness began in earnest. And lead me out of that wilderness He did, and I continued my journey along the road that leads to life.
When I was afflicted by hundreds of complex partial epileptic seizures from 1996 to 2002/3, and then by deafness accompanied by almost unbearable tinnitus from 2002-2003, by applying the lessons I had learnt while recovering from depression, I was able to skip the wilderness aspect of those trials. Eventually the Lord led me through those trials as well. The epilepsy is now controlled by medication, and an operation restored 70% hearing to my deaf ear, removing much of the tinnitus as well. I am still partially deaf, but that’s a huge improvement over being deaf.
Let us learn from Israel’s example of what to do and what not to do, and guard our hearts from grumbling against God and our circumstances. Let us praise Him, acknowledge His lordship, and learn to be content whatever our circumstances. Then we can cut short time spent in the wilderness, and in the process learn how to skip the wilderness experience aspect of future trials.
Cold windy weather is the ultimate enemy when you suffer from Trigeminal Neuralgia
Poets and novelists love to portray the beauty of a soft gently breeze, or a crisp, fresh and frosty spring morning. Well let me tell you, as a sufferer of Trigeminal Neuralgia, those soft breezes and frosty mornings are complete and utter hell. Every time the wind touches my face, I get a severe jolt of pain that makes me want to scream aloud. Going for a walk is completely out of the question, even going outside for a few minutes, takes some preparation.
Summer is on it's way, and hopefully the warmer weather will help my symptoms.
This post is more for the families and friends of TN sufferers. Trigeminal Neuralgia is such a debilitating condition, but because our pain rarely shows on the outside, it is difficult to understand. If someone has a broken arm or a leg, they get a cast on. Their pain is visible. TN is a neurological condition. The nerves jolt and spasm inside the head and it makes simple tasks like washing teeth, applying make-up and even washing hair difficult. A soft breeze to you, feels like millions of sharp knives stabbing the left side of my face, with the occasional electric shock to keep things interestingly nasty. Just because someone's pain is seemingly invisible, does not make it any less. In fact, anyone with nerve pain will tell you the pain that you can't see is the worst. We all know that if you break a leg, it will hurt for a time, but it will heal. Nerve pain is not like that.
Don't judge someone on how they seem from the outside. Think about what it is like living in their bodies. Have some compassion, and if you don't understand their pain, a simple internet search will tell you all you need to know. I can tell you that I wouldn't wish this pain on my worst enemy.
It is difficult for families and friends of those afflicted with Trigeminal Neuralgia, as I know that they feel powerless. The best thing that you can do for someone living with chronic pain, is listen. That's all that's needed. Work, college and a normal life isn't always possible when you live with chronic pain, so bear that in mind. When your friend tells you that they can't go to work or out for a drink because of pain, don't laugh it off and call them lazy. That is insensitive, insulting and completely untrue.
Please note - this article is about major depressive disorder, which is different from the most common form of depression, which has a variety of different causes, and is a normally an isolated, one-off episode.
Do Not Blame Ourselves
A reaction we may have to major depressive disorder’s return is to blame ourselves for its return, asking ourselves questions like, “What have I done to cause this relapse?”
When depression was forcing its way back into my life in 2010, I kept going through this issue, wondering if I was doing too much, not exercising enough, and so on. Here’s such an entry from my diary:
3.11.10 – Here I am, making lists again. I believe the primary cause of what I’m going through now is a combination of the following: 1. Was not eating properly for a few months due to throat problems, and lost 6kgs 2. Add to that getting sick repeatedly throughout winter, perhaps seven illnesses in a row... 3. As a result of getting sick so many times, I did not exercise regularly. 4. Pushed myself way too hard practising the the piano. 5. Though of course, it could be my damaged, epilepsy ridden brain simply misfiring, with no rhyme or reason at all.
However, major depressive disorder, which is also known as recurrent depression, is called that because it re-occurs, and does not need anything to trigger it. Instead, it is a malfunction of the brain and nervous system, and new episodes may trigger from time to time, as sufferers can have several episodes during their life. We can have months, years, or decades free of it before it triggers again.
Succumbing to another episode of major depressive disorder in 2010 was none of my doing, it was simply another episode caused by the disorder. And it followed the same pattern it took back in 1989 - 1994. Therefore must not blame ourselves or feel guilty when it returns. We are not a failure. We cannot prevent such episodes, but by responding to them correctly, for example by trusting entirely in God, keeping our eyes fixed upon Jesus, using Dr Claires Weekes techniques of facing, acceptance, learning to live with it, and letting time pass; medication, counseling, exercising, etc, we can reduce the severity and duration of the episode.
Do Not Feel Guilt if Previously Dealt with Fears Return
When I suffered an emotional/mental collapse during my first major depressive episode in Dec 1989, a fearful thought/doubt entered my mind that became an obsessive fearful thought, which terrorized me night and day, week after week, for months. I received significant relief when the fear was addressed by my counselor, but it continued to plague me until the end of that depressive episode. After I recovered, it popped up a few times but was easily dispatched. So to all intents and purposes, it had been dealt with.
Several months after the onset of this new depressive episode which began in 2010, I suffered another emotional/mental collapse, and that same fear, which had previously been dealt with, resurrected, and with almost as much power as it had back in 1989-94.
One reaction to the return of previously dealt with fears is to feel guilty, to think we have regressed to falling prey to those fears again, perhaps even thinking our walk with the Lord is going backwards. However, we have to remind ourselves that the only reason these fears have returned is because of depression. For when we are depressed, our mind typically loses its flexibility and resilience. If we were not depressed we would have got rid of the fears with ease.
So we must must not feel guilt if any previously dealt with fears return, but remember that those fearful thoughts will reduce in severity and duration as we recover from this depressive episode.
However, we may need to receive prayerful/Biblical counseling or therapy to help us deal with and overcome those fears. At the very least, we need to speak to someone wise to help us see the true perspective about what we fear, and learn to see things as they see them.
“There is now no condemnation for those who are in Christ Jesus,” Romans 8:1
Maintain Hope
Regardless of how bad a new major depressive episode becomes, we must NOT lose hope. We need to keep reminding ourselves that we recovered from it last time, and we will recover from it this time.
We need to remember that our hope in Jesus gives us the strength we need to persevere and endure whatever trials come our way. ‘We continually remember before our God and Father your work produced by faith, your labor prompted by love, and your endurance inspired by hope in our Lord Jesus Christ.’ 1 Thessalonians 1:3
Set Realistic Recovery Goals
We also need to set ourselves realistic goals for recovery if we enter a new episode of recurrent depression. Unrealistic goals create time pressure, which only makes things worse. It took me five years to recover from a major depressive episode last time, so when I was diagnosed with it again in 2010, I mentally set aside five years to recover from it again. That means five years of doing less, of reduced responsibilities, of never feeling guilty for not doing as much as I was before the onset of this depressive episode. And Jesus understands exactly what we are going through, and is there to comfort and strengthen us.
‘For we do not have a high priest who is unable to empathize with our weaknesses, but we have one who has been tempted in every way, just as we are—yet he did not sin.’ Hebrews 4:15
This is one dude's funny, self-deprecating look at his experiences with panic attacks on New York subway trains. The first one went like this:
out of nowhere, i started feeling really intense feelings that i couldn’t control, like more and more and more nervous and scared and i wanted to get off the subway so much but i couldn’t obviously because it was moving. then my legs started shaking and i was sweating and i could only see straight in front of me it felt like the universe was collapsing in my mind, and i was hyperventilating and i slid my headphones down to my neck and gently touched the arm of this middle-aged woman next to me who was also holding onto the pole. it felt like i couldn’t control my thoughts and they were spiraling towards a point where my mind would snap and/or i would actually die
so the woman whose arm i touched took one of her ipod earbuds out and suspiciously said “is everything okay?” like i think she thought i was like trying to get money from her or gonna bomb the train or something because i was nervous and sweaty and i look a little middle-eastern, and my hand was trembling, and i said to her “i don’t know what’s happening to me, i’m really sorry, i’m terrified, i don’t know why, can you talk to me please? just for like thirty seconds?”
But the panic attacks apparently didn't end there, and over time, to combat panic, the writer came up with the five techniques for managing his anxiety on the subway. (Actually, there are eight, but who's counting?) For instance, technique number one:
wear a bunch of rubber bands around your wrist and then when you start feeling terrified, pull them as far from your wrist as possible and then release them so they snap back against your wrist and it stings. this is a cheap solution that will distract you from the terror, but you will also confirm peoples’ suspicions that you have a mental illness
And technique number three-point-five:
try to envision where you are, but above ground, when you’re on the subway. like if you are on the C line for example, between Spring Street and Canal Street, think about that car wash on 6th Avenue that charges different prices for a carwash depending on the time of day, then think about that restaurant Lupe’s, then think about the Soho Grand hotel, then you’re at Canal! then do that all the way home. you will find that you know the city better than you thought you did
Clever stuff. Worth a read, for sure. Also worth a read, or so I hoped when I wrote it five years ago: an account of my first subway panic attack.
Just came across an recent article from a small-town paper about a local resident who's using cycling as a tool to fight anxiety disorders. And I quote:
STRATHMORE resident Justin Sacr can't drive a car for fear he has knocked down someone every time he hits a bump.
The 33-year-old has lived with anxiety and obsessive compulsive disorder since age 14 and, because of the phobia, his bicycle has become a 'lifeline'.
"I cycle to work every day. It has been a blessing in disguise because exercise helps me a lot," he said.
"It releases chemicals in your brain, like antidepressants, but in a natural way. It helps with your thoughts. You might look normal on the outside, but on the inside you're going through hell."
From experience: This guy's spot on. Cycling can have a hugely positive impact on your quality of life if you deal with anxiety. It's an especially good way to battle the shrinking-of-your-world of agoraphobia. The lightheaded feeling and elevated heart rate? That's what's supposed to happen when you exercise. Just push yourself to go a bit farther out of your comfort zone each time out. You'll feel better about yourself, more able. Guaranteed.
Today I am going to talk about a psychological concept I find really fascinating: cognitive dissonance. I hope, by the end of this post, you will also be fascinated by it, because heck, at the very least, it's kind of fun to slip into conversation.
First! What on earth is COGNITIVE DISSONANCE?
As I mentioned last week, cognitive dissonance is squirminess of a particular kind. It is the squirminess that happens when two conflicting yet important beliefs reside inside your skull.
You know, like:
You believe cheating is wrong. You believe you are a good person. And then you cheat.
You believe the lottery is a tax on fools. You think you are not foolish. Then the Powerball reaches 700 quintillion and ...
You like the guy in the White House. You hear a political commentator saying that he could be doing a lot more to lower gas prices.
You think being traditionally published is a mark of success. You believe you have what it takes to be a successful writer. But you've queried, and so far, no joy.
You think being traditionally published is a mark of success. You get an agent! You get an offer from a Big 6 publisher! It's a "nice" deal. Meanwhile, you're reading tales of the self-published living off the income from their books.
Okay! Are you feeling squirmy yet? So here's the deal--cognitive dissonance itself isn't what's interesting here. What is: how people deal with it. Because, you know what we usually do? We either:
change one of the beliefs (or associated thoughts or behaviors),
acquire new beliefs consistent with ONE of the pre-existing beliefs, which tips the scales in favor of one, or
forget or underplay one or both of the conflicting thoughts, reducing their importance and the discomfort.
Using the above examples: students who agree cheating is wrong but who are then induced to cheat on a task report afterward that cheating ain't so bad, or is justifiable in certain instances. People who buy lottery tickets overestimate their probability of winning after the purchase. If you like the guy in the White House, you're much more likely to decide he can't do anything about gas prices. And as for the publishing examples ...
I've been reading the articles in the Guardian and the NY Times. And the blogs (oh, the blogs!). And the Twitter. The very good points made by proponents of self-publishing, as well as those made by proponents of traditional publishing. There's been a *bit* of snipery on both sides, too.
I can't help but wonder, how much of a role does cognitive dissonance play here for writers and other industry professionals? It seems like it's much easier to demonize one side, to promote one message, to dismiss evidence inconsistent with one's argument, to two-dimensionalize the whole debate, than it is to examine it critically. Oh, and by critically, I don't mean harshly (because there's plenty of that going around!). I mean by examining the assumptions behind the arguments, the interests of the people making the arguments, and the actual facts (though let's just admit that "facts" are quite difficult to discern, because they are so very easy to spin).
This comes into play in politics, too. IN FACT, just last week I was listening to an NPR feature about this very concept and its role in partisan politics! Did any of you hear it? If you didn't, it's seriously worth a listen or a read. Especially the bits about how, when it comes down to emotional connections or facts, we tend to jettison facts and cling to our emotional loyalties. The interview discussed how to "inoculate" ourselves against that, as well. It's simple, actually: people who feel good about themselves can more easily integrate uncomfortable facts that are out of sync with those emotional connections. [Again, I do urge you to skip on over to that NPR link. I promise you won't regret it, and that you will laugh if you listen to the whole thing, which is less than 5 minutes long]
How about you? Are you taking in all the information about traditional vs. self-publishing and withholding judgment? (Or do you not actually care that much about it?) Do you think cognitive dissonance is in play? Where else have you spotted cognitive dissonance in action?
ONE MORE THING: On Wednesday, I will be hosting Brigid Kemmerer, the author of STORM, a book I have read three times because it is just that enjoyable. Stop by for a chance to win a signed copy of STORM, and to learn how Brigid manages family dynamics and interpersonal tension in her stories. Speaking as a psychologist and a writer, I can tell you I'm really in awe of how she does it, and the results.
The “big lie” is a propaganda technique in which a falsehood is repeated so often and in so many different ways that people come to believe that it is true. The term is generally credited to master Nazi propagandist Joseph Goebbels. According to Wikipedia, he wrote the following paragraph in an article dated 12 January 1941, 16 years after Hitler's first use of the phrase "big lie,"titled "Aus Churchills LĂĽgenfabrik" and translated "From Churchill’s Lie Factory." It was published in Die Zeit ohne Beispiel.
The essential English leadership secret does not depend on particular intelligence. Rather, it depends on a remarkably stupid thick-headedness. The English follow the principle that when one lies, one should lie big, and stick to it. They keep up their lies, even at the risk of looking ridiculous.
The technique has become commonplace in all sorts of marketing and is particularly rampant in Pharmaceutical Company marketing. It is part and parcel of the process of turning facts that have never been established into established facts, as I wrote about in my post of January 31, 2012.
I of course need to make the following disclaimer for any reader who is logic-challenged: Just because someone uses a propaganda technique invented by the Nazis does not make them a Nazi. I am not calling anyone in the pharmaceutical industry a Nazi, so don’t write me a letter.
I have already done several posts on how drug companies have turned irritability, temper tantrums, affective reactivity and other very normal behaviors and emotions in children into symptoms of mania (or ADHD, or both). In this post I will add one more, to show how often this nonsense is repeated over and over again in poorly designed and misleading journal articles, complete with plausible deniability, and then reported uncritically in the medical press.
One way to propagate a lie about the effectiveness of pharmaceuticals is through the publication of studies in which subjects fill out self-report tests or are subjected to symptom rating scales based on their immediate presentation at the time they are seen. The results of symptom ratings scales are tabulated uncritically and produced in a journal article- as if the results of the tests prove something. I discussed some of the issues involved in symptom rating scales in my previous posts, Counting Symptoms That Don't Count, and A Stupid Study and an Even Stupider Headline.
A journal article called Age Group Differences in Bipolar Mania by Safer, Zito, and Safer was published online in the journal Comprehensive Psychiatry on June 12, 2012. As reflected in the title of the journal article, the psychiatric press dutifully but incorrectly wrote that the conclusion of the article was that symptoms of bipolar are different in children and adolescents with mania than they are in adults.
The study seemed to say that aggression, irritability and motor activity were more prominent symptoms in pre-teens than teens. Adolescents had more aggression and irritability than adults, while adults showed more grandiosity and hypersexuality. Proof positive that the symptoms said to be more common in teens and pre-teens were actually symptoms of bipolar disorder?
If you only read the news reports or superficially glossed over the abstract of the actual article, you might think so.
Yet in actuality this was yet another repetition of the same old big lie technique. Looking at the abstract of the article more closely, the conclusion was a little different: that the results of a symptom rating instrument, the Young Rating Mania Scale (YMRS), showed this, not a complete and comprehensive diagnostic evaluation of the subjects in question: "In age-grouped YMRS item assessments of bipolar mania, anger dyscontrol was most prominent for youth, whereas disordered thought content was paramount for adults."
Notice how the authors cannot be accused of lying, since this is in fact what their study actually showed. The "take home message," however, is that this means that these symptoms are in fact valid symptoms of bipolar disorder in kids.
So let's take a closer look at the study and the YMRS. The study was based on a review of the literature describing several other studies, and the other studies that were chosen for review were "... studies reporting age group differences in total YMRS scores that included individual baseline item scores." So this study reviewed other studies that used what I will soon show is a highly suspect test.
Symptom rating instruments like the YMRS are meant for two purposes:
1. To be screen out patients who for sure do NOT have the diagnosis and make sure that anyone who might have the diagnosis is included for evaluation. In other words, the tests are designed to have a lot of false positives, that is, people who score positively on the test but do not in fact, have the disorder.
The authors of this review clearly know that the YMRS is a screening instrument: "These outpatient studies required a minimum YMRS total baseline score of 20 for inclusion and achieved total baseline YMRS scores of 28 to 33 indicating at least moderate manic symptoms [20,22,23,25]. In these clinical trials sponsored by industry, trained raters did the YMRS item scoring at baseline. The subjects who met full research criteria for mania were subsequently randomized into placebo and medication treatment groups."
2. To measure changes in symptoms over time in patients who have already been diagnosed correctly by other means. The other means that are used usually consist of research diagnostic clinical interviews, but we have no way of knowing how well the clinical interviews were done - particularly whether the duration and pervasiveness criteria of the symptoms were applied correctly, since this is frequently not done by drug company shills.
But even using a symptom rating scale to measure changes in symptoms is frought with difficulty, particularly in the case of the YMRS, which completely ignores the issue of symptom pervasiveness and duration.
The problem with tests that ask patients to rate their own symptoms was described succinctly by one patient, who purportedly said about a psychiatrist who used a self report question as the entire basis for prescribing drugs, "The question is always the same. He asks me, ‘On a scale of 1 to 10, rate your mood.’ I answer, but you know, in 6 hours I might have a different answer.”
Many of these rating scales uses what is called a Likert Scale. Likert Scales generally ask a patient or a researcher to rate the severity of a given symptom on a 4 to 7 point scale. A big issue with Likert Scales in self-report instruments is that when they ask whether a symptom is mild or severe is that they do not indicate the answer to the question, compared to what? Compared to a patient with a clinical disorder, or compared to the symptoms as they have been experienced by the patients themselves? When someone is very sad but has never been clinically depressed, he might rate the sadness as severe. Having perhaps never seen another person with a severe clinical depression, he has no external reference point that would distinguish a normal mood from a highly abnormal mood.
Now for the YMRS. The YMRS asks a clinician to rate the patient's symptom based on what the patient looks like or says at the time of the interview. Let's look at item number 5 on the YMRS scale, irritibility. The interviewer is asked to rate it on a 5 point scale based on observations during administration of the test. 0 = absent, 1 = subjectively increased, 2 = irritable at times dring the interview, or recent episodes of anger or annoyance on the ward, 3 = frequently irritable during the interview: short, curt throughout, and 4 = hostile, uncooperative, interview impossible.
Notice that there is no requirement than an effort be made to find out why the patient presents with irritability during the interview. It just assumes that it is due to the underlying mania. But how long has it been going on? Just today? How do we know the patient is not acting irritable because he had been having a really bad day, or because the interviewer was perceived as condescending? We don't.
Or take item #6, rate and amount of speech. Manic patients have what we called pressured speech - they talk and talk and no one can get a word in edgewise. This is present regardless of external circumstances. If a patient exhibits very fast speech in the YMRS interview, on the other hand, the symptom could conceivably be present because the patient is in a big hurry to leave on that particular day, but characterologically likes to make sure the doctor gets a very precise answer with all its myriad details to any question.
Without this additional information, the answers to the questions are meaningless! In children, aggression and irritability have hundreds of potential causes besides their supposedly being symptoms of bipolar disorder.
But the mantra that they are indeed symptoms of bipolar disorder in children is once again subtly repeated. Over and over and over again: the big lie technique in operation.
The Marbury Lens, by Andrew Smith, is about sixteen-year-old Jack Whitmore, who gets kidnapped and narrowly escapes. And that's just the beginning of the story. When he and his best friend, Conner, travel to London for summer break, a stranger gives Jack a pair of glasses. Through these glasses, Jack is able to see and experience another world: Marbury. It's not a good place.
Right up front, I'll tell you this: I loved this book, but it scared the crap out of me. And Jack broke my heart. And I'm still thinking about it, and those thoughts make me squirmy inside. The author did his job. I said I was a fan of visceral books, and this is about as visceral as they get (if you like Stephen King, then Marbury is for you!).
I admit, as I read, I pondered this pretty feverishly. For psychologists, the question of whether someone's experience is "real"--as opposed to the product of hallucination or delusion--is a very serious one. In The Marbury Lens, Jack tries to negotiate the "real" world while simultaneously experiencing an alternate universe full of cruelty and bleak odds for survival. He becomes deeply emotionally invested in this world and its inhabitants, particularly two younger boys who look to him for leadership. Despite the horrors of Marbury, Jack goes back again and again, unable to stay away.
But still, he keeps asking if it's real, and so did I.
An easy definition of reality: the world as it actually is.
Hilarious. If that's the case, reality is impossible for humans to perceive. We're finite, so how can we accurately perceive something infinitely complicated? And I'm not just talking quantum theory and whether-God-exists, I'm talking about the diversity of our perceptions and how my reality is different from your reality.
But if you and I and a couple other folks were in a room together, could we agree on whether that creature sitting in the corner and waving at us was actually there ... or not?
Probably we would agree that if only one of us could see it, the likelihood of it being "real" diminishes. Yes?
What if two of us could see it and three of us couldn't?
What if all but one of us could see it?
What if that one person could offer scientific proof that the thing sitting in the corner wasn't actually there, but the rest of us could hear the thing talking, and it told us our resident scientist was officially nuts?
Hmmm.
To some extent, we co-create our reality. We are very much reassured when others perceive the same things we do. It makes things real for us. Of course, popular conception--or perception--is sometimes proven wrong, but that doesn't always change our beliefs about reality. Especially if we've still got others on our side. As he's trying to determine what's real, Jack looks for that kind of comfort, but a few things get in the way--like the fact that Conner, who loves him and could provide the reassurance he needs ... is trying to kill him in Marbury.
I am swayed more by data than anecdote. I'm a horrible skeptic. A scientist. A realist. And yet, I'm a person of faith. Sometimes my head is an uncomfortable place to inhabit. Maybe that's why this book affected me so deeply. It explores this concept of other realities pancaked on top of (or within) ours, edges kissing, occasionally intruding upon each other. I absolutely love this idea. I find it both terrifying and incredibly hopeful. Unsettling AND reassuring.
So: does Marbury turn out to be an elaborate hallucination? Is Jack grabbing his demons by the horns in an alternate world, or is he dissociating as a result of the trauma he endured? Is his journey one to hell or healing? Is he taking control or losing it? Is his need to return to Marbury emotional addiction or moral compulsion? Is Marbury real?
Would you like to find out?
If you've read this book, what do you think?
(And, most importantly, do you need a sequel as badly as I do?)
I took a day off work today so that I could take my family to Werribee open range Zoo today. My little son was especially excited to see all the animals.
For me, however, this was a trip I did not want to make. I find travelling through the city difficult at the best of times, as the city centre is a rabbit-warren like maze of freeways, tunnels and confusing off-ramps.
Yet the primary reason for my reservations for this trip was that the city is in the midst of carrying out extensive road works, and I heard a couple of months ago that they had closed the road I normally used to get through the city to reach the West Gate Bridge.
As this day approached, I found myself bombarded with fearful thoughts. Those insidious “what if” thoughts came in thick and fast. What if I couldn’t find the correct off-ramp? What if upon finding the correct off-ramp, I was in the wrong lane and couldn’t reach it in time? What if I ended up travelling down an unknown section of the freeway, not knowing how to get back to the West Gate Bridge?
So I woke this morning looking for any excuse not to go. Perhaps the threatened thunder storm was moving in? That would make the perfect excuse. But with sunshine streaming through my bedroom window, I knew that excuse would not wash.
Then I made a decision. I would face this fear. I would not let fear of what could go wrong immobilise me and ruin this family occasion.
I recalled what I had read in the Bible last night. In 1 Corinthians 15:10 Paul writes, “But by the grace of God I am what I am, and his grace to me was not without effect. No, I worked harder than all of them—yet not I, but the grace of God that was with me.”
So it was God’s grace working through Paul that helped him to serve God, to live the life God gave him.
So I loaded my family into the car, faced my fears, and braved the changed traffic conditions, availing myself of the power of God’s unlimited grace.
And after all those fearful thoughts, after all those “what ifs” - do you know what went wrong? Absolutely nothing – I followed all the road signs and found the route to the bridge, and all the way to the zoo. (And if something had gone wrong, we would have found our way back to the correct route eventually.)
And we had a wonderful time. We watched an irresistibly cute family of meerkats frolicking in their habitat, we learned that zebras roll in rhino poo to smell like rhinos, so that the short sighted rhinos think the zebras are rhinos and leave them alone (ewww), we saw giraffes, hippos, even camels. And my kids had a ball, racing around the walkways and giggling their heads off.
On the way back from the zoo, I reflected on how Satan wants to rob us of the fullness of life that Jesus has given us. Satan will never hesitate to throw fears at us in an attempt to scare us into immobility, to stop us stepping forth in faith to receive the blessings that God is reaching out to give us.
The thief comes only to steal and kill and destroy; I have come that they may have life, and have it to the full. John 10:10
Satan wants to rob us of God’s blessings to make our hearts sick, but by trusting in God and stepping forward in faith, by availing ourselves of His grace, we stand ready to receive fulfilled heart’s desires, and life.
Hope deferred makes the heart sick, but a longing fulfilled is a tree of life. Proverbs 13:12.
What if you had no amygdala (the brain's tiny almond-shaped fear center)? A recent study tried to find out. The study, described here, looks at a woman referred to as SM who lost her amygdala to a rare childhood brain disease:
Experiments have strongly implicated the amygdala in fear processing. Many of these were conducted on animals with amygdala damage. “But one thing we’ve never known for sure, because they’re animals, is whether they can consciously feel fear,” says study coauthor Justin Feinstein of the University of Iowa in Iowa City. “So we said, ‘Let’s take a human patient who has this same sort of damage, and for the first time, actually figure out how they’re feeling.’”
Feinstein and his colleagues sifted through SM’s past, looking for instances when she should have been scared. SM said she never felt fear, even when threatened with a knife or a gun. The researchers gave SM an electronic diary that she carried for three months to record her emotional state. Fear didn’t make an appearance in the list of emotions. On a battery of questionnaires, SM wrote that she wasn’t afraid of public speaking, death, her heart beating too fast or being judged negatively in a social setting.
Next, the researchers did their best to scare SM. They showed her clips from The Blair Witch Project, The Shining and Silence of the Lambs: She was interested, but not afraid. The Waverly Hills Sanatorium Haunted House in Kentucky didn’t faze her. Instead of screaming, she laughed and poked one of the monsters in the head. The team took her to an exotic pet store with poisonous snakes and spiders. SM claimed to dislike the animals, but when she saw them she was overcome with curiosity, repeatedly asking to touch the snakes.
This, then, is fearlessness: A middle-aged woman who giggles in haunted houses and has an obsession with snakes. I.e., an aging goth chick. Weird, right?
Boy Toy, by Barry Lyga, was recommended to me by Helene Dunbar, who greatly admired the writing (I believe she said you could "bounce a quarter off" it, which sounds just about right) and wanted to know what I thought about the book from a psychological perspective. Once again, thank you, Helene, for recommending it!
Boy Toy is the story of eighteen-year-old Josh Mendel, who has spent the last five years bearing the weight of an open secret. When he was twelve--in seventh grade--he was sexually involved with his social studies teacher, Evelyn Sherman.
Yep.
Helene was right; this book is worth reading for the writing, for the intricate structure of the paragraphs and chapters that drags you back and forth between past and present, sometimes within a single sentence. It's worth reading if you want to see how to give the reader a visceral and jarring experience right along with a character. It's also worth reading for Josh, who is utterly fascinating in all his quirks and interests, and for Rachel, the girl who is closely tied to the crests and troughs of his journey.
It's also worth reading if you want to understand how a few things work. The first thing this book shows in harrowing detail is how a pedophile grooms a child. If you don't know how this happens, maybe you should. Basically, it's pretty common for a pedophile to do a bunch of stuff that lowers the child's guard and makes it more likely the kid will go along with what's happening without telling anyone. Sharing interests. Sharing secrets. Nonsexual touch first, then ... you get it, I'm sure.
As an adult, I recognized each of these steps as Eve lured Josh in. But because it's told from Josh's perspective, you see that he ... doesn't. He is a boy when all this happens. And his world is quite small. I see this all the time in my work with parents as I try to help them understand why a child would behave in a certain way.
When you reach adulthood, it's really easy to forget the perspective of your child self.
That's the second thing Barry Lyga shows brilliantly--the younger Josh's perspective. As an adult, you have a sense of how vast the world is, and your place in it. You have a sense of others' motives, of what they might want from you, that they might not mean what they say. But kids don't know that stuff, and they also don't know they don't know. That makes it disturbingly easy to manipulate them. For Josh, he only knows what he sees. The dark workings of Eve's mind? They don't exist for him. Despite being highly intelligent, the twelve-year-old Josh still has the perspective of a boy, even as his body sexually matures.
Which brings me to the third thing this book depicts with amazing psychological accuracy and heartbreaking detail: how some adults have difficulty understanding sexual abuse against boys when the acts appear to be consensual. The choices Mr. Lyga makes with regard to Josh's age and his physical and intellectual maturity, as well as allowing the reader to see things through Josh's eyes, only heighten that feeling of ambiguity--which is exactly what needs to happen in order to understand how Josh evolves throughout the book.
Although sexual victimization in girls is well-studied, the same is not true for boys. One review of over a hundred studies concluded that this phenomenon is common, underreported, and undertreated. What we know about sexual abuse is that is accounts for a lot of symptoms in kids that have been victims, but there's not ONE behavior that stands out. In other words, there's no single, simple result of being sexually abused.
And yes, that's related to the fourth thing I loved about this book--Josh's unique journey. At the beginning of the book, he's pretty much locked himself in a psychological box, with occasional explosions to relieve the pressure. How he emerges is so satisfying in its complexity (albeit truly heartbreaking at times) that I wouldn't dare spoil it for you. You need to read it for yourself. There's actually a quote I really wanted to share, because it might be my favorite in any book ... ever ... but I won't, because I think it gives too much away (if you've read the book and want to know what it is, email me and I'll tell you!).
Have you read Boy Toy? What did you think? Have you read other books that showed the limited perspective of a young person without patronizing or simplifying? What made it work? Ever read something where it didn't work, and if so, can you put your finger on why it failed?
And because it's Wednesday and the beginning of the month, there's a new question for the Sisterhood of the Traveling Blog: "If you’re querying now, or have in the past, how do you develop patience to wait for responses?" Laura's posted her answer this week right here.
Kafkaesque: of, relating to, or suggestive of Franz Kafka or his writings; especially: having a nightmarishly complex, bizarre, or illogical quality.
Rube Goldberg machine: a contraption, invention, device or apparatus that is deliberately over-engineered or overdone to perform a very simple task in a very complicated fashion, usually including a chain reaction. The expression is named after American cartoonistand inventor Rube Goldberg (1883–1970). Over the years, the expression has expanded to mean any confusing or complicated system.
Much to my own relief, I retired recently from my part-time job at the Veteran's Affairs (VA) hospital seeing patients in the mental health outpatient clinic. While I found the patients interesting and challenging, the VA bureaucracy was at times as infuriating as one might guess.
The Kafkaesque nature of the system in which I worked can best be illustrated by an experience I had with my picture ID card. The VA does extensive background checks on employees - as well they should - and requires fingerprinting when their identification cards get renewed every few years. The card contains a computer chip which allows the bearer access to the VA computer system, most notably patient electronic medical records. A few months ago, the computer chip in my ID card malfunctioned - way before its renewal date. I thought it should be no big deal to get it replaced. Yeah right. Not only did I have to get fingerprinted again and wait several days for them to be processed, making it extremely difficult to actually treat patients in the interim, but they also required me to produce two forms of picture identification.
The VA did not accept its own picture identification card for this purpose, which had not expired,as one of the two!
Before I go further with more bizarre stories about the place, let me make a couple of things clear. The fact that the VA is a governmentbureaucracy does not mean that private companies cannot be just as nuts - or even crazier. They can certainly be far more hostile. I used to work for one. As a friend of mine who worked for both of my former employers said, at least the VA bureaucracy was predictable in its crazy decision making, while the private firm we worked for was crazy but whimsical. Sort of like the Dilbert comic strip.
Let us turn to the issue that made the news: problemswith scheduling patient appontments in a timely fashion. Much of the coverage in the news simply ignored the fact that an influx of new patients who are veterans of the wars in Iraq and Afghanistan has overwhelmed the VA healthcare system. There are just way more people reliant on VA than ever before. This happened without a commensurate increase in funding or staff until just recently, and there is still a lot of catching up to do.
In 2003, The VA expected to see 4.7 million veterans in its hospitals and clinics, up more than 54 percent just from 1996. The influx of newly-injured and/or mentally traumatized vets has continued every year since then as the wars dragged on, and funding of the system for the treatment of these wounded warriors did not keep up. Not even close. Frankly, the politicians who yell "support our troops" the loudest do NOT believe in supporting our troops after they leave the service.
In mental health in particular, visits to mental health clinics have skyrocketed as the military has attempted to change the "macho" culture that discouraged such visits in the past.
So what to make of the bureaucrats who kept phony schedules to hide the fact that veterans often had inordinate waits before they received an appointment? Well, when you give employees a mandate to do something as a condition of continued employment, and you don't give them the tools and resources needed to accomplish the mandate, they will naturally become passive-aggressive and do crap like that. They have no choice. And we know how bureaucracies treat whistleblowers, so everybody shuts up and goes about their business doing their best to get around the double bind they are all in. To get patients seen in a timely fashion, you would think that the place would, at the very least, be very quick about putting in the appointment system the times when various doctors are available in their clinics to see and treat patients. Again you would be wrong. Whole clinic days of mine would disappear from my upcoming January schedule in the computer for an upcoming new year, and it would take two or three months of me complaining about it for the clinic times to reappear. I could not schedule anyone! I finally found out why it took so long. At least this is what I was told: There was just one person doing this job. Not one person for a few clinics. One person for the whole humongous medical center! 539 provider schedules, give or take.
Still, in the defense of the VA, at least part of the fault for patients not getting seen in time by a doctor may have in some cases lied with the patients. I can not speak for VA facilities in Phoenix or the rest of the country, but here is a photograph of an actual sign displayed prominently at the entrance to the VA hospital in Memphis:
In addition, at least in the mental health clinic I worked in, one of the doctors was always available to see every walk-in patient who came in without an appointment - even if they hadn't stopped near that sign to get checked in. Furthermore, the hospital had what they called a "patient advocate's" office, where vets could complain about problems they were having getting seen. The patient advocate was usually very effective at getting them in. If the patients described in the news media who died before they got in for an appointment were that sick, maybe they should have not just followed the instructions of the schedulers about how soon to come it. "I vas only following orderz" is not a good excuse.
Still, it is clear that the VA does tend to be a lot more concerned with looking good rather than actually doing good. For an illustrative example, a mandate came out that veterans who were diagnosed with mental trauma and post traumatic stress, either from war or military sexual assault, had to receive a certain number of psychotherapy sessions within a prescribed period of time after their initial evalutation.
The hospital administrators recently bragged in an e-mail to the department that they had met the target.
What they actually did was to put all of these patients into group therapy, which in my experience was, in a lot of cases, next to worthless - instead of giving them the much more effective individual treatments. The VA where I worked does not have nearly enough psychologists on staff to provide individual treatment to everyone who needs it, and the ones they do have are mostly busy doing other things because they are maldistributed as well.
For post traumatic stress disorder uncomplicated by major personality disorders, in my estimation the most effective psychotherapy treatment is something called prolonged exposure (PE), a type of desensitization treatment. Another treatment that is "empirically validated" - by which some people mean that there are some studies, no matter how pathetic, showing that it is minimally effective - is called cognitive reprocessing therapy (CPT). That in my experience is less effective for a lot of patients than PE.
Commensurate with my experience at the VA in Memphis, an article in the journal Psychiatric Services by Watts and others published in May of 2014 found out that, nationwide, the percentage of veterans who received any sessions of either PE or CPT was six percent. Six percent! But our VA bragged about fulfilling the mandate because the veterans were seen by a mental health professional the correct number of times. Well sort of seen, anyway.
More on looking good rather than doing good in upcoming posts in this series, coming soon to a blog near you.
Slipping back into a depressive period when you’ve been so stable for a good few years is like receiving a letter to warn you of your fate and then descending into hell with a parachute.
It’s gentle, expected, and eerie. You know this place, you recognise these feelings, and you’re not so scared and alone as you were before.
If I wasn’t depressed, I’d be frustrated that I am, once again, depressed. I’d be angry and confused as to why I’ve found myself back being hopeless and helpless after doing so well for so long. But I’m depressed, so I’m not feeling that at all. I’m just looking at those feelings having a strop over the other side of room and thinking, “I can’t be arsed to feel that tbh, it’s too much effort and I just don’t care.”
Finally being back in the senseless pit after feeling its slow, frustrating, confusing, and irritable presence for some weeks is almost a relief. Is that wrong?
I expected this. My life for the first four months of this year was training for, and then running, a marathon. Have I mentioned, etc. I knew the abrupt change to my lifestyle after it was over would be tricky, if not tough. I knew I’d be moving flat immediately after (for a month - we have a long changeover which hasn’t actually been as much of a relief as we wanted) and I knew I’d be last-minute fundraising and preparing for the MoonWalk (15 miles through London at night) which is this Saturday, just three weeks after the London Marathon, because really why not.
I also knew I’d be going on holiday to Salzburg with my mum between moving flats and doing the MoonWalk, and Riga with Ryan the weekend after our final move-in weekend, which is also his birthday.
The above is all happening within the same month. I knew this. I know this. It is not a surprise, and nor is this location back to the pit. All of that is a lot for anyone to deal with, let alone a person who is a little fragile.
I’d heard of the post-marathon blues. Feeling down after a marathon is totally normal and expected, but I didn’t really notice it. I didn’t have time to, I was busy. But my fitness level and diet changed immediately, and I know that what you put into your body, and what you do with your body, affects your mood, so maybe that could be a reason I’m back here at Flat 0, 3 Cries A Night Road, Boredom, DPR SSN.
Or maybe it’s the fact that on top of everything above, I’ve had to cope with one cancer scare and one cancer diagnosis this week, a frustrating ex-landlady and even more frustrating companies who aren’t making this flat move any easier for us.
I’m also on my period. Maybe it’s that.
I could spend hours, days analysing why I feel like I’m living deep inside my body unable to communicate, use my senses, make much sense of what’s happening around me, or care. About anything. But there’s not much point. The point now is to deal with it and wait the bullshit out. I know it won’t last, I know things will get better. I know all this. There are a lot of things I know about my mental health now, and I'm grateful and privileged to know them.
I know I’m in a depressive episode when:
My anxiety behaviours are nowhere to be seen.
Any attempt at self care is met with boredom and effort.
I can’t concentrate/am clumsy/make constant mistakes.
I don’t enjoy anything. I wasn't particularly enthralled about going on holiday.
I cry at everything.
I have a constant buzzing noise in my ears.
My tongue feels numb.
I can’t talk to anyone. I don’t know how. The connections in my brain are fucked.
I see very little point in doing anything.
I sleep a lot.
I hear nothing on the outside but everything inside my body. Food digesting, skin cells growing.
I just. Don’t. Care.
I know the things that will help me are:
Constant communication from friends where:
replies aren’t expected
how I’m feeling isn't mentioned
stupid jokes are made
random hairdresser-style nonsense is babbled
you RT my shit even if it's not funny
Food, whether I want it or not.
Water, whether I want it or not.
Hugs, but only if I want them.
Little verbal communication.
Fresh air to try and kickstart my senses again. Even if it’s sticking my head out the window.
Listening to good music. I listen to music way more when I'm like this. Send me good music.
Just waiting it all out until the ladder appears for me to climb out the pit.
I’m still ok. I’m not in crisis, nor do I need serious support. I’m still stable. This experience of the pit is a very different one to the years I spent in it before. I’m still strong, important, and brave. I’m still incredibly aware of my sense of self; my mental health has just slipped between a gap in the fence. I’m a little fragile, a little unable, and just a little bit exhausted.
I’m going to make myself comfy down here. ---
If you're struggling with your mental health and need support, you can visit:
The Mix, if you're under 25. Call their free helpline on 0800 808 4994.
Mind. Call their infoline on 0300 123 3393 or text 86463.
Samaritans if you're having suicidal thoughts. Call 116 123.
As the world grows richer and older, mental illness is becoming more common. John Prideaux considers the consequences
IT ALL BEGAN when she lost her head. According to legend, Dimpna, a 7th-century Christian heroine, fled her native Ireland when her father, mad with grief at the death of his wife, developed an incestuous passion for his daughter. The father came after the girl and, rebuffed once more, beheaded her in the flatlands of what is now northern Belgium. Dimpna was canonised, and in medieval Europe developed a reputation for divine intercession that could heal madness. Her cult centred on Geel, a small Belgian town that forms one point of a triangle with Brussels and Antwerp. By the 19th century Geel had developed a system of foster care for the mentally ill in which patients, or guests as they are referred to, are adopted by families. It continues to this day. When at the turn of the 20th century the Belgian government threatened its existence with a decree that the insane should live in institutions, the whole town designated itself as an asylum.
Geel’s system can make heavy demands on the host families. Not everyone is deemed suitable for a foster placement—a high suicide risk and a penchant for pyromania are two counter-indications—“but the list of exclusions is not so long,” says Bert Lodewyckx, who runs a team at the local hospital that looks after elderly patients. In a town of just 35,000 souls, about 270 families have people living with them who would otherwise be kept in an institution. Foster families are told nothing about the psychiatric history of their new companions. “For a time, being a foster family was prestigious, a bit like owning a Mercedes-Benz,” Mr Lodewyckx explains. Host families are paid about €20 a day, but their main motives are tradition and altruism.
The way the mentally ill are treated in Geel is unusual. At most times and in most places, caring for such people has been the responsibility of the biological family, which is not always kinder than strangers. Medieval Europeans sometimes locked up family members in basements or shut them away in pig pens. In China, where care of mental patients continues to fall largely on their families, such treatment is sometimes still being reported. In one case a man fashioned a homemade restraint for his son by fitting chains to a chair; in another a woman suffocated her sister with a pillow to lift the burden on the family.
China’s psychiatric system, such as it was, was largely shut down after 1949; the new Communist government made no provision for mental illness in a rationally ordered society. Yet as the country has grown richer and more urbanised, demand for mental-health care has grown. In 2012 China passed its first national mental-health law.
This is a typical pattern. The rise of psychiatry in America coincided with the post-war economic boom. Surveys by the World Health Organisation (WHO) show that spending on mental-health services increases sharply once GDP per person reaches around $20,000—the same level at which people start buying insurance, yogurt and other middle-class indulgences.
Two things lie behind this. Richer societies put more resources into diagnosing and treating mental illness, and older societies have more people with dementia. China is on its way to becoming both rich and old. This shift is usually accompanied by an expectation that society ought to shoulder more of the cost of treating mental illness, which can become too heavy for a single family to bear.
The statistical relationship between mental illness and development is new evidence for an old theory. Since the 19th century, people have been arguing that mental illness is a price to be paid for progress. In “Civilisation and its Discontents”, Sigmund Freud popularised the notion that neurosis increased in tandem with profit. Before Freud, an American neurologist, George Beard, had noted that a nervous disorder he labelled neurasthenia (and others nicknamed “Americanitis”) was on the rise. He put it down to the speeding up of modern life, facilitated by the telegraph, the railway and the press.
Neurasthenia disappeared from the psychiatrist’s lexicon in 20th-century America but enjoyed a long afterlife in China; Chairman Mao himself was said to suffer from the condition. It faded from view only after Arthur Kleinman, a Harvard anthropologist, conducted fieldwork in China in the 1980s and concluded that the symptoms of neurasthenia were rather like those of depression. Drug companies spied an opportunity to sell pills that they were already making. Rates of diagnosis for depression, which was virtually unknown in China 20 years ago, are now catching up with those elsewhere.
This is not because economic progress, of which China has seen more than any other country over the past three decades, makes people sick. Rather, it is due to a combination of the profound effect that growing richer has on diagnosis and the less forgiving standards for normal behaviour set by modern service-sector jobs. Dealing directly with customers makes different demands on the brain from work in a factory or on the land.
Surveys suggest that the incidence of serious mental illnesses such as schizophrenia (a condition characterised by hearing voices and withdrawal from society) and bipolar disorder (which causes extreme, uncontrollable mood swings) is fairly constant at between 1.5% and 3% of the population around the world. By contrast, the incidence of milder forms of mental disorder varies much more between and also within countries. This is true for common depression, anxiety, post-traumatic stress disorder, attention-deficit disorder and many others. In the rich world, these conditions taken together affect about 20% of the population at any point in time. America’s federal government estimates that in 2013 about 44m of the country’s population of around 325m suffered from some kind of mental illness, with depression and anxiety the most common.
The OECD, a club of mostly rich countries, reckons that the direct and indirect costs of mental illness already exceed 4% of GDP in some places. A report from the Harvard School of Public Health and the World Economic Forum says that between 2011 and 2030 mental illness worldwide will cost over $16 trillion in output forgone (in 2010 dollars), more than physical ailments such as cancer, heart disease or diabetes (see chart). But such predictions should be treated with caution, for reliable numbers on mental illness, both within and across countries, are very hard to come by.
This is because, in the absence of a proper understanding of mental illness, the various disorders, syndromes and character traits that are labelled as such are really just thoughtful descriptions of changeable symptoms. In America, health-insurance companies rely on the definitions provided by the American Psychiatric Association’s Diagnostic and Statistical Manual (DSM) to determine what counts as sickness and what is merely within the usual range of variations from the norm. Each edition of the DSM removes some disorders and adds others. (The WHO maintains its own system, called the International Classification of Diseases, or ICD, whose definitions differ from the DSM’s.)
The most recent edition of the DSM lists around 300 mental illnesses. But the symptoms of mild depression are so different from the disabling effects of the severe sort that the two things probably ought not to share a name, and neither has much in common with, say, post-traumatic stress disorder (PTSD). This special report will try to make sense of this tangle by looking at the main afflictions of the brain at different stages of life. The first sort affects children as their brains develop; the second shows up in adolescents and younger adults; and the third appears as people get older and their brains begin to waste away.
Chasing a chameleon
The choice of definition, which is itself subject to change, has an effect on the diagnosis. But the thing doctors are trying to pin down is also inconstant. At the beginning of the 20th century it was common for people in the West to be diagnosed with nervous disorders. These have been replaced by conditions such as anxiety and depression. Soldiers in the first world war suffered shellshock, which could cause loss of the power of speech and, in some cases, partial paralysis, with no apparent physiological basis. By the middle of the 20th century other varieties of distress caused by battle had taken over. More recently PTSD has become an increasingly common psychiatric diagnosis for returning soldiers, displaying slightly different symptoms.
Symptoms change not only over time but from place to place. “To say that someone has a conduct disorder does not mean the same thing in Mozambique as it does in Manhattan,” says Shekhar Saxena, who runs the mental-health arm of the WHO. In some places hearing voices is considered normal, even desirable when part of a religious experience. In other it might be cause for prescribing antipsychotic medication. The difference is subjective: psychiatrists are usually interested only in voices that are distressingly insistent or say something unpleasant.
Other factors that affect the incidence of mental illness include people’s willingness to talk about it. Some might not want to admit that they are having problems. On the other hand, eligibility rules for welfare payments may provide an incentive for being diagnosed with anxiety or depression.
Diagnosis is also sensitive to advances in pharmacology. The current popularity of antidepressants, which are taken by one in ten Americans at any one time, has a lot to do with drug companies’ success in coming up with a form of drug delivery that is safe and does not have nasty side effects. Antidepressants that act on serotonin, a neurotransmitter that affects mood, have been around since the dawn of the jet age, but became widely used only once drugs such as Prozac, which were convenient and considered safe (and therefore easy for family doctors to prescribe) were developed. Until then, doctors had been fairly free with tranquillisers. In the 1950s Miltown, the brand name for meprobamate, a mild calming drug, was taken by about one in 20 Americans, mostly for anxiety.
The use of psychiatric medication itself sometimes seems like an epidemic in the rich world, but it can go down as well as up. In the late 1990s France was the world leader in malaise, with about 30% of its citizens taking psychiatric drugs, but since then the numbers have come down. Cognitive behavioural therapy, a form of short talking therapy that aims to break self-destructive patterns of thought and replace them with something more positive, has been found to work at least as well as pills for treating mild depression and is becoming more widely available.
Do not despair
Because mental illness is so hard to pin down and measure, it is easy to lose sight of how debilitating it can be. One widely used yardstick is the “Disability-Adjusted Life Year” (DALY), which the World Health Organisation defines as one lost year of “healthy” life free from physical or mental disability. Mental illness now accounts for a significant chunk of DALYs (see chart).
A more objective measure used in most health systems is the suicide rate. In Detroit, where a high murder rate, high unemployment and many abandoned houses meet any definition of a stressful environment, the Henry Ford Health System, which looks after much of the city’s population, has cut suicide among its patients by systematically assessing their risk.
In 2009, with the effects of the financial crisis still reverberating, the Henry Ford Health System managed to bring the number of suicides among its patients down to zero, an impressive achievement for an outfit that in 2013 counted 3.2m outpatient visits. There is no way of stopping those who are determined to kill themselves—“when someone is telling you that they want to make it look like an accident so their family gets the life insurance, then you know it’s really serious,” says Doree Ann Espiritu at Henry Ford. But many suicides are opportunistic acts of despair that can be prevented by putting netting under bridges, making it harder to jump onto subway lines and controlling access to large quantities of painkillers.
Because of the link between economic development, ageing and mental illness, the coming decades are likely to resemble an age of unreason. That is why Geel, which has been caring for people with such conditions for half a millennium, is worth paying attention to. What is striking about the town is how thoroughly normal it seems: the town square with its fake Irish pub; American pop music playing at a polite volume on the main shopping street. Mental illness, so often frightening, seems ordinary here. Geel’s system embodies principles for dealing with it—dignity, openness, kindness, patience—that should be embraced by societies everywhere.
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